Statistics
It is estimated that 1/10,000 females in the US will be born with Rett syndrome, so about 16,000 women in the US have Rett syndrome. Rett syndrome has been classified as a rare disease by the Office of Rare Diseases of the National Institutes of Health.
Everyday Life
Families have reported that life surrounding a child afflicted with Rett syndrome is usually a constant state of challenging emotional conflict because of the overwhelming responsibility of the family to care for the child. Families are advised to seek therapists for themselves and their family, and support groups are also advised.
For more information, please visit:
-http://www.rsrt.org/rett-and-mecp2-disorders/rett-syndrome/
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